Archives: <span>FAQs</span>
Data from which the identity of a specific individual can reasonably be ascertained.
Details attached to data, such as name and/or contact information, that identify an individual. (It may remain possible to identify an individual even after all identifiers have been removed, if a code number has been assigned and there is access to the code, or if the data or tissue can be cross-linked to other data or tissue banks).
The substance, structure, and texture of human organs or body parts when separated from human beings; includes blood, blood components and waste products.
Human Research Ethics Committee.
That which adversely affects the interests or welfare of an individual or a group. Harm includes physical harm, anxiety, pain, psychological disturbance, devaluation of personal worth and social disadvantage.
Any source of DNA or RNA that can be tested to obtain genetic information. It includes cells (whether isolated or as part of tissues) and extracted DNA and RNA.
The concepts of right and wrong, justice and injustice, virtue and vice, good and bad, and activities to which these concepts apply.
Body set up to carry out ethical review of human research.
Review of research by an HREC or other body.
Right or morally acceptable / wrong or morally unacceptable.
A systematic collection of data, whether individually identifiable, re-identifiable or non-identifiable.
Pieces of information
A person’s or group’s agreement, based on adequate knowledge and understanding of relevant material, to participate in research.
In the research context: where a person’s individual interests or responsibilities have the potential to influence the carrying out of his or her institutional role or professional obligations in research;
or
where an institution’s interests or responsibilities have the potential to influence the carrying out of its research obligations.
The obligation of people not to use private information – whether private because of its content or the context of its communication – for any purpose other than that for which it was given to them.